When Margaux, now a 21-month-old Reimagine participant, was just three months old her pediatrician first noticed the identifying qualities in her eyes that would be diagnosed as aniridia, an eye disorder characterized by a complete or partial absence of the iris, which causes severe vision impairment and light sensitivity.
When Margaux’s family was first informed about aniridia, their instinct was to be very protective of Margaux. As first-time parents, her mother and father focused on the importance of preserving the vision that Margaux does have, while learning how to handle the discomfort of people noticing the way that Margaux’s aniridia sometimes causes her eyes to shake. As they navigated the first few months after her diagnosis, they held Margaux close, often staying home to protect her eyes from the sun and to avoid the uncomfortable feelings that came with being out in the community with her.
Margaux’s parents were introduced to Reimagine and its Child Development Program through Margaux’s teacher for the visually impaired, who believed that Margaux would benefit from the program’s rich mix of therapist and peer interaction. Margaux’s parents decided to brave life outside their home and enroll Margaux in Reimagine’s twice-weekly early intervention class. The experience has been transformational for Margaux and her family. Margaux loves going to Reimagine, where her days include a fun rotation from room to room with other children in her program. Margaux is the smallest and youngest, but she’s fearless. In fact, Margaux’s teachers and therapists note that she has become very social and likes to connect with the other students by sitting or standing close to them and smiling. Margaux has embraced learning, always attempting to do everything she is asked, including art and gross motor activities.
Margaux is continually attaining new skills through her physical, speech and occupational therapies, as well as work with a mobility and orientation professional who specializes in helping children with vision impairment. Her parents have noticed major strides in Margaux’s ability to confidently navigate a space, and understanding her environment, such as where a wall ends, or how much space to leave between herself and the teacher during story time.
Margaux was initially apprehensive about getting on certain pieces of equipment during physical therapy, like the mini trampoline and the spinning chair. After a few tries and lots of encouragement, Margaux now loves playing on the trampoline so much that her grandmother purchased one for her to use at home. Similarly, she is now comfortable in the spinning chair and likes to spin other students in it.
Best of all, Margaux is forming a delightful personality, chatting sweetly in a mix Spanish and English and showing empathy for others when they are upset by coming up to them to show them gentle support. Seeing these wonderful personal qualities growing in Margaux has proven to be a true gift to her parents as they start looking ahead to their daughter’s future with pride and excitement instead of uncertainty and fear.
Serving children ages 12 to 36 months, Reimagine’s Child Development Program is designed to close the gap in readiness among children of pre-school age with vision impairment, physical disabilities, and developmental/intellectual delays and disabilities. For more information on Reimagine’s child development programs, click here.
